Welcome to the Neuromuscular Institute of Quality-of-life Studies and Outcome Measure Development website!
The Primary Mission of this Institute is to create the next generation of clinical trial outcome measures and disease-specific patient relevant instruments.
It is our belief that these instruments will better enable clinicians and investigators to identify, test, and utilize therapies that have the greatest benefit to patients.
We emphasize and prioritize the input of our patients. Given this, our outcome measures are designed not only to meet the United States Food and Drug Administration (FDA) requirements for product development, but also to focus on the symptoms and issues that patients tell us are most important in their lives.
Thank you for visiting our site.